INFORMATION FOR RESEARCHERS
Involving people with lived experience and expertise is critical in dementia-related research. The Flipping Stigma on its Ear Toolkit is a direct outcome of a Participatory Action Research (PAR) study where academic researchers and people with lived expertise of dementia came together as co-researchers to address the stigma and discrimination that so frequently accompany a diagnosis of dementia. To learn more about this research study
We invite you explore the toolkit and listen to the Action Group members' words. As a researcher, we hope that you will reflect on your research practice and consider future interactions with those who live with dementia .
HERE ARE SOME QUESTIONS TO CONSIDER AS YOU NAVIGATE THROUGH THE TOOLKIT:
How are my assumptions as a researcher challenged?
As a researcher, are there ways that I have inadvertently made people with dementia feel like I see them as incapable?
In trying to involve people with dementia in research, have I instead contributed to "tokenizing" people with dementia?
Have I ever assumed that someone with dementia is not capable of taking part in and contributing to research just because I know they have a diagnosis?
What ways can I make sure to always communicate respect and dignity when I am conducting research with someone with dementia?