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INFORMATION FOR RESEARCHERS

Involving people with lived experience and expertise is critical in dementia-related research.  The Flipping Stigma on its Ear Toolkit is a direct outcome of a Participatory Action Research (PAR) study where academic researchers and people with lived expertise of dementia came together as co-researchers to address the stigma and discrimination that so frequently accompany a diagnosis of dementia. To learn more about this research study 

We invite you explore the toolkit and listen to the Action Group members' words. As a researcher, we hope that you will reflect on your research practice and consider future interactions with those who live with dementia .

HERE ARE SOME QUESTIONS TO CONSIDER AS YOU NAVIGATE THROUGH THE TOOLKIT: 

How are my assumptions as a researcher challenged?

As a researcher, are there ways that I have inadvertently made people with dementia feel like I see them as incapable?

In trying to involve people with dementia in research, have I instead contributed to "tokenizing" people with dementia?

Have I ever assumed that someone with dementia is not capable of taking part in and contributing to research  just because I know they have a diagnosis?

What ways can I make sure to always communicate respect and dignity when I am conducting research with someone with dementia?

WE WANT YOUR FEEDBACK!
Tell us what you think about this section of the ToolKit.

If you want to learn more about the Action Group who created this Toolkit, and how you can create your own initiative, visit:
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Created by OPIA

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